fibromyalgia

My WW Story

WW, formerly known as Weight Watchers. “Wellness that works.” What finally drove me to sign up for a weight loss program after decades of self-sufficient obesity?

Pain.

Not just any pain. A very particular kind of nerve pain. Specifically in my left foot. More accurately, the top of my foot…with periodic zaps of electricity pricking the sole of my foot from the inside out,

The top of my foot is so hypersensitized right now that the hem of my pant leg feels like a jagged, splintered shard of glass scraping across it.

Fun stuff.

According to the doctor it’s a rare condition called Tarsal Tunnel Syndrome. Like Carpal Tunnel, but, in the foot.

Yay me! I have a knack for the unusual when it comes to pain and injury. A few years ago, I fell and gave myself a spiral sprain. That’s usually something athletes get, not the general population. But, that’s another story for another time.

The doctor laid out my options:

Gabapentin – an anticonvulsant sometimes used to treat a wide array of mood disorders with some extreme (but rare) side effects like agitation, increased libido, and mania…Sounds like it could trigger a manic episode and I’m already taking four different psych meds to manage the bipolar, depression, anxiety, and insomnia. No. Thank. You.

Surgery – I’m a single mom, struggling to parent my High Functioning Autistic child who also experiences ADHD. I also live upstairs. I can’t afford an extended recovery period from surgical intervention.

Weight Loss – the universal answer to whatever ails you if you carry excess fat on your body, Don’t EVEN get me started! However, it was the most viable of my three options.

Initially, I doubted I could effectively transition from a life so sedentary that my spirit animal could be mistaken as a sloth. After all, WALKING HURT! So, I decided nutrition was the key.

I have lost weight before, using activity and nutrition. As a matter of fact, I lost 20 lbs at the beginning of this year with walking and changing to a healthier diet. Then, I transitioned from my manic state to a bad depressive state, stopped moving, and switched to a fast food diet. The 20 came back and brought a few friends. Five to be exact.

So, here I was – a 49 year old, medically obese woman of 265 lbs with hypothyroidism, Type II Diabetes, high cholesterol, Bipolar II Disorder, PTSD, fibromyalgia, and, now, Tarsal Tunnel Syndrome.

I also have the child I’m parenting, a 25 year old daughter, who is also parenting three littles, who (whom?) has me as her primary emotional support person and occasional baby sitter, and a son turning 32 in three days.

I have a lot of healing to do and a lot to live for. Also, I’m finally reaching the point in life where I believe I’m worth taking care of, too.

I needed help.

So, I searched Weight Watchers. They still had their Labor Day Special going on. It was barely something I could financially afford.

I’m destitute. Between my youngest daughter’s issues and mine, I am not currently able to sustain employment. Her dad pays for electricity, internet, this miniature hand-held computer I use to blog aka cell phone, and pays for all she needs. I live in public housing, survive on $352/mo of SNAP benefits (formerly known as food stamps), and a $72/mo stipend.

I committed close to half my stipend to the first six months of my Weight Watchers lifestyle.

Since I also experience a hitherto undiagnosed Binge Eating Disorder, I decided to approach this like a recovery program and committed myself to attend 90 meetings in 90 days.

Today, November 6, 2018 is my 53rd day and I will be attending my 55th meeting.

If you’re curious about or interested in how this part of my journey has gone, you can find it on my Instagram, humaninrecovery. Start here.

Addendum: I’ve lost about 20 lbs and I have walked daily for the past several weeks and can now walk two miles at a time…sometimes in under 20 min/mile. Yes, the nerve pain is still there.

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C’mon Get Happy

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This week’s WW topic is “Happiness.”

Today was the first of seven of these workshops I’ll be attending this week on my “90 meetings in 90 Days” journey. (I owe you a post to explain that. Tomorrow. Maybe.) Today’s discussion was interesting. I’m looking forward to see how it gets addressed in the other workshops.

The weekly handout suggested that being happy makes the healthy activities we do in our lives more possible and increases the experience of those things. It also acknowledged that partaking of those activities increases happiness.

The workshop’s Coach listed a formula that determines one’s happiness level:

50% Genetics
+10% Life Circumstances
+40% Attitude, Thoughts, & Actions

My immediate reaction was to scoff at the Life Circumstances percentage. I mean, although it hasn’t been as painful and difficult as other people’s, it’s been generously peppered with a lot of trauma. Consequently, I have PTSD. Plus, I experience Depression, Bipolar 2 Disorder, fibromyalgia, and am parenting a child with regularly tells me things like she wishes I would kill myself or that I had been born dead.

Yeah. Happiness is HARD. That’s a LOT of genetics and life circumstances.

I spend a lot of time fighting tears, dealing with bureaucracy, and managing conflict. I’m skeptical that Happiness is a state of being that’s more than occasionally possible for me.

I think Acceptance and Contentedness are much more doable. I think there can be moments of happiness. I think we have to be emotionally and mentally healthy and functional to be able to experience even those moments of happiness. I simply don’t believe that Happiness is achievable as a permanent state.

All that being said, I have my own formula:

Psych meds
+Therapy
+A supportive community
+Activity
+Self-Care
+Choosing to be in positive environments


The ability to experience happiness.

What say you?

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My whys


I mentioned in yesterday’s post that I joined WW (formerly Weight Watchers) mid-September this year. I have a laundry list (Why “laundry”? Wouldn’t “shopping” make more sense? I think so, too). Correction, shopping list of whys. Not the least of which is Tarsal Tunnel Syndrome, a rare disorder of the ankle, similar to Carpal Tunnel Syndrome. Here’s the complete list:
Family – I have two adult children (32 & 25), three grandchildren (4,3, & 1), and a nearly 10 year old on the higher functioning end of the autism spectrum and who experiences ADHD.

Physical Health – Fibromyalgia, Hypothyroidism, Type 2 Diabetes, Sleep Apnea, High Cholesterol, and Tarsal Tunnel Syndrome.

Mental Health – Bipolar 2 Disorder, PTSD, Depression, Binge Eating Disorder.

Because I’m worthy of self-love and self-care.

I’ve spent nearly five years of hard work to reach this point. I had been a toxic person in a toxic relationship. I had severely broken relationships with my two adult children. I was so overwhelmed and depressed I was barely functional. I was so consumed with self-loathing that I hid from the world, making myself sicker and sicker, consuming all the food and media I could numb out on.

Now, I’m working on staying centered in the here and now, continuing to heal, grow, and build relationships with my children, engaging with the world and people around me, and learning how to treat myself with the care, compassion, and love I have and want to have for each person I encounter.

It’s past time for me to become the best version of myself.

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Sleep…or lack thereof

Back in September, immediately prior to the rebranding, I joined Weight Watchers (more about that later. Or you can head over to IG @humaninrecovery and see what’s been happening.)

Every week is a new topic of discussion about mindset, behavior changes, and achieving goals. I call it DBT Lite. This week’s topic is sleep.

Sleep doesn’t love me as much as I love it. It seems as if it never has…at least not since adolescence. I mean, I’m writing this at 2:45 A.M. because sleep abandoned me.

Correction: my lovely, not so little, daughter chased it away and it’s eluded me ever since, four+ hours now. Now, she’s sound asleep and I’m wide awake. *sigh*

Supposedly, not having my phone in the bedroom with me would help with getting back to sleep. I’ve tried. Can’t do it. It’s my alarm. It’s my fidget. It’s where I do the brain dump. It’s how I run my brain down until sleep is possible again.

I have horrible sleep hygiene…always have. My room is a cluttered mess. My bedroom & bed are multipurpose locations. My bed is shared with a growing, nearly 10 year old child with sensory issues and needs. So, she’s either burrowing into me, flailing arms in my face, and/or hogging the covers. Occasionally, she snores and breathes through her mouth…Her dad sent me an article yesterday which suggested an exam with an ENT could turn up some medical condition causing sleep disruption which can present like ADHD. More on that later.

In addition to clinging to me like a baby gorilla, she insists on listening to “girl music” when she’s ready to go to sleep. Read: female pop artists. She goes to sleep fairly easy once the music is going. Not me. For someone who has words constantly flowing through her brain, pop music is especially unhelpful when trying to go to sleep. Any music with words is, including what she calls “God music,” my CCM Pandora channel, heavily salted with music by MercyMe.

Then there’s temperature.

I can’t sleep if it’s warm…she freezes and turns into a heat seeking baby gorilla. I like it cool enough to want my feet under the comforter…yeah, I know, weird. The problem with that is the baby gorilla blanket thief.

Let’s see, what else?

Oh, yeah. My body & brain. I’m a premenopausal spoonie with Bipolar 2 Disorder & PTSD. If the nighttime neuropathy doesn’t get me or the busy brain, the night sweats and apparently shrinking bladder will.

And, so, I guess it isn’t that sleep doesn’t love me. It just doesn’t feel welcomed or wanted. *sigh*

The kicker is that I don’t even drink coffee or other caffeinated beverages to get and stay functional. Apparently, I’m a deceptively alive and youthful looking zombie vampire.

Yes. I’m 49.

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NanoPoblano – November 2018 Daily Blog Challenge

🤔 You’ve probably noticed, or maybe not, how dormant my blog has been for a long while. Periodically, I try to jumpstart my writing by doing a daily blog post challenge. This is another such effort.

The past few times I started a challenge, I haven’t been able to do the full month before…life. My hope and my plan is to incorporate my life into this month’s effort.

By that I mean I’m going to bring y’all up to speed with the things that have been going on in my life this year, especially the past couple of months:

• Parenting
• Autism
• ADHD
• Bipolar 2 disorder
• PTSD
• WW (formerly Weight Watchers)
• Binge Eating Disorder & Compulsive Eating

are among the things I’ll write about. There may even be a haiku or two and other poetry tossed into the mix.

Welcome and thanks for joining me on this journey.

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Ten Day Check-in

Yesterday I decided I would take pics every ten days to document my journey. It’s not really evident in the pictures yet, but changes are happening. I can feel them. Others are seeing them.

My stomach is slightly less round…a smaller “apple” than it was. 😉 My clothes are a little looser. As a matter of fact I pulled down a pair of jeans I got about ten years ago, before I got pregnant with my third, youngest, and LAST child. I was between 225-240. I can’t remember exactly. What I do know is that I squeezed into them and got them buttoned while standing upright.

WINNING!

More importantly, I’ve exercised 8/10 of the days a minimum of 30 minutes. I kind of overdid it the first few days – my intensity was good, but the amount of time each session was a bit much.

During my walk on Sunday, I had a burst of pain in the front of my right hip. Turns out I now have bursitis in that hip. I’ve shortened the time per session to 30 minutes and taken it to the water.

The doctor I saw (who appeared younger than my 31 year old son) was very encouraging and gung ho about me exercising. He said exercising in the water was good and referred me to physical therapy. My first appointment is the 30th.

The biggest challenge, for me, is the fibro-fatigue. I’m really tired, not I worked hard and pushed my limits tired, but, my get up and go, got up and went. Some of that is parenting stress.

My nine year old experiences the world through the Autism Spectrum. I also suspect she’s got some preadolescent hormone changes happening. She struggles with emotional self-regulation and is easily frustrated and angered. She’s been having increasingly violent responses and I’ve borne the brunt of it.

I’m also tired from lack of sleep. Some of which is also attributable to the issues between me and my daughter. However, I’ve had poor sleep my entire adult life. It’s a trauma thing, apparently.

So, I’m tired and pretty much the exercise and, maybe, the dishes, are the only things I’m accomplishing on a regular basis.

I’m trusting this will not last and that my energy levels will improve by the end of the month.

Overall, it’s been a great start to 2018.<<<<<<<<
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When life goes awry: It’s ok to not be ok

Last Friday was one of those days where the first domino got knocked down and the remainder of the day’s plans and goals crashed one by one.

I’m sure you’ve experienced something like that at one time or another. If you haven’t, best be prepared because you will.

My daughter had a MAJOR meltdown that morning – it got physically violent (she’s on the Autism Spectrum) and she wound up not going to school.

That meant I couldn’t go to the gym or pool. There’s no space or place in my tiny, overcrowded apartment for me to do anything, including stretching. It’s THAT crowded and cluttered.

I was frustrated and irritable at this disruption in the new routine of self-care by exercise. I didn’t take it out on my daughter, but I was experiencing a significant amount of resentment.

Parenting a child with special needs is HARD and I NEED the stress release of the exercise.

When there is a spike in stress hormones coursing through my body, especially in combination with other hormonal changes, a fibroflare is likely to occur.

“What’s that?” you may be asking.

I was diagnosed with Fibromyalgia 28 years ago. Symptoms include persistent, fatigue and increased pain response to anything and everything. During my most intense episodes, just running a finger across my skin feels like a razor blade.

So, I’m struggling against the fatigue to still make exercise a priority. Each day I exercise, the fatigue makes me feel like I’m moving through molasses once the exercise is done. I feel completely drained. It doesn’t help that I also happen to be an insomniac.

There are days when I fight to get the kid to school and to bed, go to the gym or pool, and, maybe, wash dishes. The rest of the time I’m sitting and dozing off.

I’m trading the energy from other things so I can exercise. But, the exercise is what helps me mentally get through the day.

In the past, I criticized myself for not getting more done, or anything done for that matter. I couldn’t let myself be okay with not being okay.

This process is showing me that I can be.