Anxious Breaking down So much to push through and fight
Fearful Poor health Self-care to care for others
Hopeful Fingers crossed Aspirations may soon be met
Loved Generations together Smiles and laughter ‘midst the angst
I decided not to use a prompt today. I just ended my work week after about two weeks off. Weekend graveyards is a tough schedule and I seldom get 3-4 hours of sleep between shifts. So, my brain couldn’t process the complexity of the prompt.
My laptop gave up the ghost and won’t turn on. So, my writing will now be done using the phone app. *sigh*
Confession, I had no idea what liminal meant. When I looked it up I learned that it’s about the ambiguity of being in a transitional state. Neither here, nor there, but somehow occupying the borders of both spaces. Now that I know what it means, I can honestly say that it’s the story of my life.
From childhood forward My mind active and yearning Voracious, needy
Guidance lost too soon Bottled grief. I was unmoored ‘Tween loss and anger
A runaway teen Trauma and disappointment New life comes forth
On the road again No peace, no rest, nowhere home Life saved from cruel death
Back where I started Family ties bind and gag Beginning again
In my element Learning and aching to grow Success! Feeling hope
Upward and onward Fast forward to my limit Falling and spinning
A life not taken Ungrounded, always a risk Begets a new life
I spent decades lost Throwing away loved ones Relationships burned
Scrabbling from the pit Trapped in a cocoon of mind My health overwhelmed
Hard recovery Love’s faith in community Investing in me
Beginning again Not alone but supported Still renovating
I love you, in a sweet, soft, sigh
From the mouth that once
Pierced my heart
With painful words of hate
Embraced in arms
Firm with soothing assurance
Used to pound fists
Of punishment on my back
Eyes warm with love
Their gaze brightly meeting mine
Used to glare in anger
Over nothing I understood
Soft lips kiss my cheek
In tender sentiment
Had cursed me
In angst and turmoil
Intelligence and curiosity
Shine in the beauty of
You may have thought this was describing the cycles of an abusive relationship, at first.
You’re not wrong. But, there’s a lot more to it than that.
In this case, the “abuser” was my child. My brilliant, creative, and inquisitive child, who happens to have an autistic brain.
There was a time before the identification of the autism, when I was struggling so hard, as a mom…mostly due to my mental health and relationship problems with her father.
I have attachment disorder due to the emotional neglect I experienced from infancy onward. Nursing her until she weaned herself was one of the most challenging choices I ever made. Especially since her “period of PURPLE crying” lasted the first five months of her life. She was essentially inconsolable. I was the only one who could hold or soothe her, even a little bit…much to her father’s angst and anger.
Then, one day I was no longer the preferred parent.
The first time she called me a bitch she was two.
Fast forward to her fifth birthday when all hell broke loose between her sister and father. That event was this camel’s straw and I left, taking her with me three days later.
For the past seven years we have been in almost constant conflict. Yelling, name calling, hitting, kicking, scratching, and biting. multiple meltdowns a day. There were days I hated being her parent.
Anger, frustration, guilt, and helplessness were my constant states of mind. My spirit felt defeated.
Then pandemic. I got my first real job in nearly 8 years. Then distance learning. I changed my shift to weekend grayards so I could support her school. Going back to middle school was something you couldn’t have paid me to do. Thanks to COVID-19 I did it for free.
Then Winter Break…two weeks of not having to login. I stopped fighting her. It was destroying us.
I decided that waiting for f2f school to start again was the thing to do. We aren’t the only family or special needs family not being able to make it work.
We started having conversations…mostly about her art and online activities with her preferred programs. We also discussed as many aspects of LGBTQ+ gender identities and sexual orientations as I am familiar with and researched others. Overall, things starting getting better with us. She’s much less combative and exponentially more affectionate, both verbally and physically.
We’ve had a winter snow and ice storm for the past few days. Not necessarily as severe as many other parts of our country and throughout the world…places where the residents ridicule and demean us for not being prepared and whining about a little bit of snow, which shut down our city, to the point where mass transit was cancelled and cab service was several hours late. Normally, this kind of thing would cause people to isolate and get cabin fever…but, pandemic. We were already there.
This also happened over Valentine’s Day weekend. Just another weekend for me. Except, as an essential worker in the mental health field, I still had to report for my graveyard shifts. Fortunately my supervisor has a 4WD SUV and transported me to and from for a couple of shifts. I went to work and fought against fatigue and sleepiness. I seldom sleep well during the days on my night shift weekends. I have an apartment full of people, including four littles six and under. Plus, insomnia. I’m usually awake within two to three hours after laying down.
I love my family, but, the relationship tensions of eight people, a dog, and a cat occupying a two bedroom, 1 bath apartment are inescapable. Between the pandemic and the exorbitant rise in housing costs, I have no idea when my adult daughter’s family of six will be able to get into their own space. It’s challenging to parent my 12 year old daughter with an autistic brain, in a small bedroom that we share, when she wants nothing to do with the nieces and nephew. Their sleep schedule is completely off center from ours. I can’t access the kitchen when I wake up early or get home from work because people are sleeping in the living room, right next to the kitchen. Additionally, my grandkids (and their parents, lol) are kind of like locusts. If they can see it, it’s fair game. So, it can be challenging keeping food for my youngest daughter and myself available when we need it.
So, I ordered a mini-fridge and microwave for my room. Basically I’m turning a small (miniscule) bedroom into a dorm room shared by me and my youngest. A couple of weeks ago, I spent 10-12 hours cleaning and organizing the room. Now, I need to do more in order to make room for the new appliances. I honestly don’t feel up to it, but, the appliances are supposed to be here in the next four or five days. Which means I don’t really have a choice.
Pandemic. Essential Worker. Underhoused. Family tension. Parenting struggles.
Even though I have the support of my faith community, I don’t feel connected to anyone particularly, though I know they would do whatever they could to help me out if I needed it.
I’m feeling isolated and alone in the midst of the chaos.
I’m battling my mental health issues. I’m struggling with physical health issues. My self-esteem is in the crapper…hating myself because of ingrained fatphobia.
Reading all the Valentine’s Day challenges – the love stories of the friends near and far on Facebook, is becoming more bitter than sweet.
My head feels like it’s going to explode. My chest is tight and it’s hard to breathe. My eyes won’t stop leaking and my sinuses are getting stuffed.
I don’t understand why I feel so isolated and unloveable. Listening to Justin Bieber croon how fucking lonely life is, just really resonates.
So, I’m in a pattern of self-sabotage with my health, which feeds into the self-esteem issues. I feel hopeless about making the changes I need to in my current circumstances…and I’ve basically given up trying. I shower and dress when I need to go to work. I eat bags of chips and drink soda for breakfast some days. Despite the type two diabetes, I can’t stop with the soda and carbs. I see the 150 extra lbs I’m carrying on my body and feel self-disgust and think, “of course no one is going to love you like this.” I want to hide and not be seen by people.
But, I still go to work. Sometimes I go to the grocery store. But, that’s all. That’s really where most people are at during the pandemic. The thing is, that was my life pre-pandemic, except for weekly excursions to church. The loneliness and isolation are exhausting. I have no energy left to love and care for myself.
I really need to get and stay on-track with my meds.
Parenting is hard. Parenting a child with special needs is hard. Parenting a girl in active adolescence is hard. Parenting from a place of trauma is hard. Parenting an adolescent girl with special needs when all aspects are points of trauma in your history, is beyond hard.
I feel like I’m constantly falling down, constantly lacking, and constantly failing . . . even though I know I’m doing my best. I know I’m a better parent now than I was seven years ago. I’m a better parent now than when my oldest daughter was the age my youngest daughter is now, 12. I’m a better parent than my mother was able to be when I was 12. But, I still don’t feel like I’m a good parent or the parent my child needs and deserves.
The reality is that I am really struggling. I love my child but I don’t like her. I love her so much and want so much good for her, but I find myself resenting her for things she has no control over. I’m so proud of her and amazed by the things she does and how strong and determined to be herself she is. At the same time, I am so incredibly ANGRY at how her strength and determination flatten and steamroll the people around her . . . like me and her nieces and nephew. I love her but I hate being her mother.
That’s awful. I know it is. But, it’s also my truth. It’s a convoluted truth rooted in the trauma, rejection, and abandonment issues between my mother and myself when I was 12 years old. Issues that I will never be able to work with her on because she died . . . committed suicide . . . when I was 12.
My little girl isn’t so little anymore. She turned 12 at the beginning of December. She’s taller than me . . . mostly because, like many children on the Autism Spectrum, she’s a “toe walker.” She travels on her tiptoes. Walking with her feet flat from heel to toe is like an impossibility for her. There was no physical reason for it and we put her through physical and occupational therapy to try to prevent any negative effects from the toe walking. To no avail. Now it’s reaching the point of discomfort and pain for her to not walk on her toes.
I wish I could let her be herself, with her idiosyncracies and quirks, without feeling so beyond frustrated and annoyed. She absolutely refuses to do anything or engage with anyone other than her preferred activities and people who she wants to be around. I feel powerless, especially in light of the societal expectations, rules, and norms regarding parenting and education, especially with children who have special needs. The thing is she doesn’t appear or seem to be autistic to most people. Even her medical evaluation team had difficulty coming to agreement regarding her autism. She’s lived in emotionally traumatic circumstances since conception. So, there are behaviors and reactions that stem from the autism and there are behaviors and reactions that are rooted in her trauma exposure history. Stir in pubescent hormones, in the middle of a pandemic that has everyone acting off and dealing with various types and degrees of trauma, and I have my very own Katie Kaboom.
If the truth be told, I’m probably as much of a Katie Kaboom as my daughter is . . . or at least I feel like I’m on the verge of exploding with her a lot of the time. There’s this surreal sense of loss of control and imminent danger creating a sense of fear of myself and what I’m capable of.
The last memory I have of an interaction between me and my mother lingers on the edges of my consiousness most of thetime when I’m around her.
I had recently turned 12. It was late June or early July, I think. We were living in an old adobe group of single story apartment buildings that had been built to use as military barracks in the 1940’s. Adobe buildings surrounded by asphalt. No trees. No grass. No shade. It was unrelenteningly sunny. The air was still and stuffy. My mom was working as a night janitor with her brother and his wife, who lived in the building catty-corner from ours. While cleaning may have been her job, it wasn’t something that was a priority in our apartment. We were a couple of clutterbugs. So my mom was embarrased for people to see the condition of our apartment. All the doors were shut tight and windows shuttered and covered so no one could see in.
I was hot. The heat was draining and I had no energy to do anything. I just wanted to breathe and I felt like I was suffocating in the stuffy heat of the closed apartment. I didn’t want to go out in the shadeless parking lot/driveway that surrounded the apartments. We had only lived here for three or four, maybe five months. I didn’t have any friends and didn’t have anywhere I could go. I was restless and listless at the same time. I decided to stand in the doorway, with my face pressed against the doorframe on the right, the door pressed against my left cheek, my stocky body filling the area between the door and it’s frame. Nothing visible from the outside.
She was embarrased, exhausted, and overwhelmed . . . I know and recognize this now, but at that time I only thought she was being controlling and unreasonable. It felt like what I needed and wanted didn’t matter to her, even a little bit. She was yelling at me, trying to get me to close the door. I was yelling back, telling her how no one could see inside. I don’t know how long it went on. Not long, I’m sure, but, it felt like it stretched on for a long time, each of us getting angrier and louder. I can’t remember specific words. But, it wouldn’t surprise me if I had called her names or cussed at her.
Suddenly my head was jerked back by my hair and the next thing I remember is that I’m laid out across the sofa and she was sitting on my legs, preventing me from moving. I was yelling at her and trying to kick her off of my legs. Finally, I was able to sit up, bend forward, and I bit her on her thigh as hard as I could until she got up.
I don’t really know what happened after she got up. I know my uncle burst through the door a short while later to check on me. He had seen me standing at the door, then disappear suddenly before the door closed. He was condemning and critical of her. She was crying. Sometime after that, she signed guardianship of me over to him and moved back down to Texas. A few weeks later we got the news that she had committed suicide.
When I’m dealing with my daughter and she’s refusing to do things like, take a shower, let me brush her hair, login to classes, do homework, or anything that isn’t playing Minecraft or drawing on her iPad I feel a rush of overwhelming feelings swirling around: anger, resentment, frustration, shame, sadness, hopelessness, helplessness. Then she starts laying on the insults and declarations of how horrible of a parent I am and how she loves her dad more than he loves me. If I attempt to remove her iPad, she lashes out at me physically – hitting, kicking, scratching, biting.
The roles appear to be switched with me as the mother. But, on a visceral level I don’t feel any more in control or that I matter than I did as a kid going through what I went through with my mom.
Maybe there’s a clue in that. Maybe it’s a hint that she wasn’t feeling in control or that she mattered. We don’t feel in control or that we matter so we do things that are about taking control and power from someone else, not because we want to feel powerful, but because we want to matter and if we don’t feel like we matter, we don’t feel safe. If I don’t matter to those who matter to me, then I don’t feel that my needs can get met. I’m supposed to meet her needs. It’s not her job to meet my needs. It’s not right or fair of me to resent her for this.
Is the resentment about her or is it about resenting that the person whose job it was to meed my needs and who I was supposed to matter too, oppressed and suppressed me instead of take care of me?
I know now that my mother experienced undiagnosed and untreated mental illness – likely Bipolar I with schizopherenic tendencies. She couldn’t help it and it wasn’t her fault. This knowledge and understanding gives framework and context, but, it doesn’t change the feelings and the child who needed protection and nurture still didn’t get protection and nurture. I struggle to protect and nurture myself and I struggle to provide that for my child.
I’ve been in and out of various forms of therapy since pre-adolescence. I’ve been doing it pretty consistently for the past seven years. Sometimes I wonder if I’m ever going to reach a point of being emotionally healthy.
The PTSD has had deep and lasting impacts on both my brain structure and neurochemistry. Bipolar II Disorder means that my brain structure and neurochemistry were already atypical. Both impact emotional health and affect my capacity for instinctively choosing emotionally healthy behavior.
Ten months ago my faith community stood beside me and supported me in my mental health recovery journey. They chose to pay for me to go through trauma recovery therapy, so I could better deal with the myriad of intense psychological and emotional stressors in my life. Past trauma is something I’ve been minimizing, avoiding, and denying most of my life. Dusting it off, picking it up, looking it in the eye, and examining it is not even close to easy. What is easy is distancing and distracting myself, even as I try to face it.
Last week I had a Telehealth appointment, which turned into an audio only appointment because of my dying phone. Since there’s no unoccupied space in my apartment and the sanctuary of a vehicle no longer exists, I walked to a coffee shop that has a large, covered, outdoor seating area. It also happens to be the socially distanced gathering place for the neighborhood dog owners and their dogs to hang out. I sat as far away as I could so as to be heard by my therapist and not heard by the community of strangers. Fun times.
I was telling her what happened the night I dropped my phone. I had gone over to my friends’ house, where I had been living from March – November, to pick up Christmas gifts for my grandkids. While I was there, the woman who had been my first friend from a DBT group I had been part of in 2018/2019, absented herself and had no interaction with me. Her wife indicated that I could try to communicate with her, but I would probably be unsuccessful. The wife is now my primary friend.
I have a lot of sad and mad feelings about this relationship break. However, when I was discussing what happened that night with my therapist, my brain fixated on the broken phone, as if that was the source of my difficult emotions. I was completely aware that’s what I was doing, but couldn’t seem to stop it. So, I said out loud that my brain was wanting to focus more on the phone than the lost friendship.
We discussed that for a bit. We drilled down some and identified some roots in prior relationships with important women in my life, starting with my mother, that ended in rejection and abandonment. Still a lot to unpack there, but both my therapist and I recognize that I’m stretched to capacity to address more trauma at this point. With that agreement in place, the question becomes, “what direction do we go and what do we work on?”
Since I’ve made some significantly bad decisions in the past several months which were decidedly co-dependent, avoidant, and risky and the outcomes of these decisions have increased the emotional, physical, and financial stress on me, thus maxing out my capacity for doing the more in depth trauma work, I figure I need to work on making emotionally healthy choices when faced with situations where my trauma responses have been triggered. I think that’s the only way to clear the path for me to do the deeper work.
My therapist suggested that my lack of emotionally healthy response is more likely rooted in the fact that I’ve never been around emotionally healthy people making emotionally healthy choices and that, while it may be possible for me to come to an understanding of what it means to be emotionally healthy, I may continually deal with an inability to operate with that same understanding. To which I responded that is why I said learning the behavior that comes from being emotionally healthy can be learned, even when the emotions aren’t healthy.
I think of it like reverse engineering good emotional health. Learning to act “as if” I am an emotionally healthy person, might enable me to become an emotionally healthy person.
I think I just found my focus for this year.
2021, the year I become an emotionally healthy responder.
Rejoice with those who rejoice; weep with those who weep. ~ Romans 12:15 HCSB
How can we show up in the midst of pain and grief for our marginalized siblings in the world around us, when we have no idea what to do or say to them and what we CAN do feels futile in the face of the vitriol and intentional ignorance? How do we not wind up making our sense of ineffectiveness and futility more important than their experiences of violence and suffering?
The answer is to BE with them in their grief. Acknowledge and validate their anger. Learn why they fear the things we don’t. Share and celebrate the things and people they celebrate. Be willing to set aside your “stuff” to show them they and their “stuff” matters. In other words, treat them the way you want to be treated.
It may be challenging to look away from our own issues, circumstances, and experiences in order to look and see those of others, much less step into their world and be with them. But, it’s very much worth the effort to do so. We also have guidance on how to do this.
‘He comforts us in all our affliction, so that we may be able to comfort those who are in any kind of affliction, through the comfort we ourselves receive from God. Praise the God and Father of our Lord Jesus Christ, the Father of mercies and the God of all comfort. ‘ 2 Corinthians 1:3-4 HCSB
How do we receive comfort from God? Sometimes it’s an internal sense of peace or a lifting of the spirit, maybe a lessening of the pressure on our chest or the lessening of the restriction of our throat. Maybe it’s through a song, a poem, a meaningful writing, or piece of scripture. Perhaps a video or show. However, there are times when it is another person and their words, actions, or just them being present with us which contributes to the feeling of being comforted. Those are the things we can do and share, if they are something the person grieving is in a place to receive.
‘The Spirit of the Lord God is on Me, because the Lord has anointed Me to bring good news to the poor. He has sent Me to heal the brokenhearted, to proclaim liberty to the captives and freedom to the prisoners; to proclaim the year of the Lord ’s favor, and the day of our God’s vengeance; to comfort all who mourn, to provide for those who mourn in Zion; to give them a crown of beauty instead of ashes, festive oil instead of mourning, and splendid clothes instead of despair. And they will be called righteous trees, planted by the Lord to glorify Him. ‘ Isaiah 61:1-3 HCSB
Jesus came to do these things, show us how to do these things, and teach us to do these things so we can share and demonstrate the love he shared and demonstrated to us. This is how we can learn and know how to show up in the midst of the pain and grief, anger and fear, our marginalized and brutalized brothers and sisters experience.
Many people are experiencing various waves of emotions about what’s going on in the world today: panic, fear, anger, sadness, etc.. These are all normal responses to the global threat and common traumatic experience. However, if those feelings get too intense and pervasive, it can become debilitating and make it difficult to function. Then, there’s also dissociation – that feeling of being disconnected from emotions surrounding these events…kind of like compartmentalizing thoughts and action separate from emotional response. In my personal experience, that kind of thing I’ve learned as an automatic coping mechanism, which is an automatic response to trauma, a symptom of my PTSD. For me, dissociating has enabled me to get through periods of life when I was experiencing things which would have triggered overwhelmingly immobilizing emotions.
The thing is, we get really good at what we practice, right? In my life, I’ve bounced from trauma to trauma to trauma and dissociating, disconnecting from my emotions to the point where it became my way of life. I got so good at it, that, not only did I not consciously experience the “negative” emotions, I was also disconnected from the “positive” ones. It’s important to realize that emotions are neither negative or positive. Emotions are instinctive tools which tell us something about ourselves and the world around us. If we don’t learn how to read and understand our emotions in any given situation, then, whatever action we take as a result of the emotions we experience can have negative consequences.
Another word for practice is “exercise.” The more we exercise dissociation, the stronger our ability to ignore, push down, and function in spite of our emotions becomes. Suffice it to say, I have very strong dissociation muscles. They developed into a form of brute strength. But, brute strength only gets you so far. In order for it to be useful and constructive, that brute strength must be shaped, sculpted, and toned. In other words, training is needed.
I had a lifetime of developing the brute strength of dissociation to contain and manage my emotions until they started leaking around the edges and creating some truly negative and destructive consequences. I’ve now spent over six years training to hone and reshape how I handle my emotions. Dissociation is still my automatic “go to” response to intense emotion. However, it’s now mitigated by things I’ve been learning. Specifically, DBT (Dialectical Behavior Therapy) has been very instrumental in teaching me how to harness and use the strength of dissociation in constructive ways. All while I continue to train and learn new methods and ways to mitigate it.
Which brings me to the present time of stress and trauma we are all going through as individuals, families, communities, a nation, and the global collective.
In the past month, I have experienced the feelings and had the thoughts of many, if not most, people in the world around me. I have seen two distinctive responses to those thoughts and feelings: acknowledgment and acceptance of the world as it is now, or fear or denial about how bad things are or will get. The first response gets things done and keeps one moving forward, facing and learning to overcome these new challenges. The second response results in stagnation and, possibly, regression.
I believe my well-developed “trauma muscles” and the training they’ve been getting from therapy, DBT, and spiritual growth is what has enabled me to address the issue and effectively deal with issue of being unemployed. It is also the thing which has helped me to continue my healing and growth process in my mental health.
Don’t get me wrong. I don’t think that trauma is the best training tool for learning how to deal with and manage emotions. It isn’t. Trauma changes us and derails our path to who we had the potential to be. Maybe that’s a good thing, maybe it’s not. It impacts our relationships and our ability effectively and constructively function in the world. But, with training and healing work, I believe that the strength we gain from surviving trauma, can become powerful and impact our lives and the lives of others in amazing ways.
At the beginning of this month’s challenge, I mentioned my youngest daughter, but, I haven’t said much about her. Since I’m having some big feels regarding her and my relationship with her, I figured I’d talk through it here. If nothing else, I’ll get some more Emotion Color Wheel practice in. I’m feeling sadness and love. Sadness about her not being with me and love simply because she’s my daughter.
Digging deeper, I realize my sadness a lot of things: distressed, melancholic, shameful, and hopeless. Exploring that more reveals that I feel agonized and hurt, depressed and sorrowful, regretful and guilty, anguished and powerless. That’s a lot of sadness that’s heavy on my heart. I’ll get to the whys in a little bit. But first, I want to explore the love more. There’s tenderness and longing. Those expand out to compassionate and caring, affectionate and sentimental. That love is all twisted and intertwined in the sadness.
The love is actually buried under the sadness in a lot of ways and I think that’s all tied to my childhood trauma and the mother wounds I carry. I know I have attachment issues. It’s very, very difficult for me to be physically affectionate. I don’t enjoy snuggling, hugging, and close physical contact with anyone. I never have. Please don’t hold my hand for more than a few seconds. I can give hugs, but, please don’t hug me. Don’t get me wrong. I love being with people and interacting with them, but, not in a physically close way. This social distancing thing and communicating via Zoom, Messenger, FB Groups, and texts are all fine for me. Much easier for me than being in a roomful of people.
But, I digress.
I’ve known about my attachment issues for a very long time. I’ve been acutely aware of it since my youngest daughter was born, a little over 11 years ago.
I decided to breastfeed. Great for her health and good for us financially. Except, that’s the only thing she would do if she wasn’t screaming or crying. She howled for 45 minutes after she was born and didn’t really stop for the next five months. She was constantly on a breast. Clinging to me. Burrowed against me. I wore her in a wrap around me because it was the only way I could get anything done. It was like being pregnant, only carrying the child on the outside of my body. My life was centered around her need to feed and have that comfort.
I hated it, but forced myself to do it because I wanted to give her that opportunity for attachment to me in ways I hadn’t been given with my mother and had been unable to give with my older children. So, I also decided to let her self-wean. Only, she didn’t really. She nursed until she was almost three. By then I had to cut her off. It took her a couple of years to stop asking for it. Part of the reason I let her nurse so long was because her dad, who she was very attached to, was a truck driver and took a long-haul over the road job and was gone weeks at a time. Then, after an incident between him and my teenage daughter, I moved out and got my own place for a couple of years, thereby limiting their ability to be with each other. So, nursing was the primary touch point for comfort and a sense of safety and stability I could give her…even though I hated it.
Her dad and I stayed separated for a couple of years, but, were still enmeshed with each other and I wound up letting him move in with me. By the time a year had gone by, I was either in an emotionally hyper-reactive state or in a near catatonic dissociated state in order to manage the depression without knowing I was also trying to manage PTSD and Bipolar Disorder (II) and not receiving treatment for it. Things came to a head on her fifth birthday and I took her and left three days later. I have not gotten back together with him, but, because of her and her issues, he’s still too much a part of my life and I continued to be psychologically and financially enmeshed with him.
It turned out that our little girl is on the autism spectrum. It’s hard to tell because she’s what’s considered high-functioning. That label implies that she’s less impacted by the spectrum issues because she’s highly verbal and more social than children on the spectrum are often characterized as being. I don’t think she’s less impacted. I think she’s impacted differently and I’ve had to fight tooth and nail to get her the identifications, diagnoses, services, and supports she needs.
Over the past six years, her dad and I have “co-parented.” In our case that means he got to have her with him on weekends, school breaks, and holidays, while paying for her needs and wants, providing my phone, and paying for electricity & internet. So, functionally, I was operating as single parent. I was the one to deal with all of the agencies, organizations, medical facilities, and educational systems. I was also the one who bore the brunt of her emotional/behavioral issues.
She got increasingly violent with me, both verbally and physically. I have been shoved, slapped, hit, kicked, scratched, and bitten. I have been called a bitch, told I am hated and that she wished I had never been born or that I would die like my mother and go to heaven. I was the one who dealt with the school when she would get suspended for tearing the classroom apart or physically attack staff and students. I couldn’t let her be around my grandchildren because she was very mean to them.
She wasn’t always like this. She never acted like this when she was with her dad.
Last Thanksgiving some serious things happened and my adult daughter’s family became homeless. At that time, my grandchildren were five, four, and two. I couldn’t see them living on the street or in a shelter. So, they all crowded into my apartment. My little girl’s behavior escalated again, until it reached the point where she attacked me and punched me in the spine. I couldn’t take anymore and I had her move to her dad’s.
That was just before we went to social distancing, then shelter-in orders. I’ve only seen her a couple of times since then and done video messaging a few times. I don’t know what to do or say that is meaningful for her. I miss her, or the idea of her and having a good relationship with her. At the same time, I’m relieved I don’t have to be in her presence 24/7. So, lots of sadness with bits of love sprinkled throughout.
We’re supposed to spend some time together on Friday. We’ll see how it goes.