Anxious Breaking down So much to push through and fight
Fearful Poor health Self-care to care for others
Hopeful Fingers crossed Aspirations may soon be met
Loved Generations together Smiles and laughter ‘midst the angst
I decided not to use a prompt today. I just ended my work week after about two weeks off. Weekend graveyards is a tough schedule and I seldom get 3-4 hours of sleep between shifts. So, my brain couldn’t process the complexity of the prompt.
My laptop gave up the ghost and won’t turn on. So, my writing will now be done using the phone app. *sigh*
Confession, I had no idea what liminal meant. When I looked it up I learned that it’s about the ambiguity of being in a transitional state. Neither here, nor there, but somehow occupying the borders of both spaces. Now that I know what it means, I can honestly say that it’s the story of my life.
From childhood forward My mind active and yearning Voracious, needy
Guidance lost too soon Bottled grief. I was unmoored ‘Tween loss and anger
A runaway teen Trauma and disappointment New life comes forth
On the road again No peace, no rest, nowhere home Life saved from cruel death
Back where I started Family ties bind and gag Beginning again
In my element Learning and aching to grow Success! Feeling hope
Upward and onward Fast forward to my limit Falling and spinning
A life not taken Ungrounded, always a risk Begets a new life
I spent decades lost Throwing away loved ones Relationships burned
Scrabbling from the pit Trapped in a cocoon of mind My health overwhelmed
Hard recovery Love’s faith in community Investing in me
Beginning again Not alone but supported Still renovating
I love you, in a sweet, soft, sigh
From the mouth that once
Pierced my heart
With painful words of hate
Embraced in arms
Firm with soothing assurance
Used to pound fists
Of punishment on my back
Eyes warm with love
Their gaze brightly meeting mine
Used to glare in anger
Over nothing I understood
Soft lips kiss my cheek
In tender sentiment
Had cursed me
In angst and turmoil
Intelligence and curiosity
Shine in the beauty of
You may have thought this was describing the cycles of an abusive relationship, at first.
You’re not wrong. But, there’s a lot more to it than that.
In this case, the “abuser” was my child. My brilliant, creative, and inquisitive child, who happens to have an autistic brain.
There was a time before the identification of the autism, when I was struggling so hard, as a mom…mostly due to my mental health and relationship problems with her father.
I have attachment disorder due to the emotional neglect I experienced from infancy onward. Nursing her until she weaned herself was one of the most challenging choices I ever made. Especially since her “period of PURPLE crying” lasted the first five months of her life. She was essentially inconsolable. I was the only one who could hold or soothe her, even a little bit…much to her father’s angst and anger.
Then, one day I was no longer the preferred parent.
The first time she called me a bitch she was two.
Fast forward to her fifth birthday when all hell broke loose between her sister and father. That event was this camel’s straw and I left, taking her with me three days later.
For the past seven years we have been in almost constant conflict. Yelling, name calling, hitting, kicking, scratching, and biting. multiple meltdowns a day. There were days I hated being her parent.
Anger, frustration, guilt, and helplessness were my constant states of mind. My spirit felt defeated.
Then pandemic. I got my first real job in nearly 8 years. Then distance learning. I changed my shift to weekend grayards so I could support her school. Going back to middle school was something you couldn’t have paid me to do. Thanks to COVID-19 I did it for free.
Then Winter Break…two weeks of not having to login. I stopped fighting her. It was destroying us.
I decided that waiting for f2f school to start again was the thing to do. We aren’t the only family or special needs family not being able to make it work.
We started having conversations…mostly about her art and online activities with her preferred programs. We also discussed as many aspects of LGBTQ+ gender identities and sexual orientations as I am familiar with and researched others. Overall, things starting getting better with us. She’s much less combative and exponentially more affectionate, both verbally and physically.
Confession: I’m a Type 2 diabetic who is addicted to sugar & carbs, in all forms… especially soda.
I (semi-deliberately, because mental health issues) misplaced my glucometer and haven’t taken my blood sugar levels for months…after having an a1c of over 12.
I just found my meter and poked my finger. The result? 402.
For those not familiar with the meaning and significance of the terms and numbers: Glucometer is a portable piece of equipment a person uses to measure their blood sugar in the moment. Three times a person might take a measurement is upon waking, after an 8-12 hour “fast.” This is what I did this morning. The goal is under 200. Immediately before a meal, two hours after a meal, and before bed are other common testing times.
A1C is a blood test taken in the doctor’s office that measures the degree of sugar in the blood stream over the previous 90 days. A 5-5.5 indicates pre-diabetes. A 6 is diabetic.
I have a lot of work to do.
Right now, my first goal is to kick the soda. The measurable goal is to get my fasting blood sugar under 200.
I’ve been drinking more water. I’ve been trying sparkling water… it’s a taste I’m not sure I’ll ever acquire. Sugar substitutes are a non-starter and fruit juices are still sugars.
I’m literally addicted to soda as much as anyone can be addicted to drugs and alcohol. I haven’t been able to say, “no,” when offered. I haven’t been able to leave it alone if it’s around.
The smile hides depression and self-loathing…a severe lack of self-esteem and sense of futility. The hair and angle of the pic hide the double chin and side padding of obesity. You can’t see the fibromyalgia, hypothyroidism, type 2 diabetes, PTSD, Bipolar 2 Disorder, and Binge Eating Disorder. Yet, I look healthier and happier than ever before… according to an FB friend.
I wrote about being functionally depressed and nothing has really changed. I still pretty much only venture forth from my dwelling are occasional grocery shopping trips and to to work. My ADLs (Activities of daily living) are sporadic – personal hygiene is taken care of whenever I have to leave the apartment or I feel too disgusted by myself. Nutrition is not a frequent thing…I may or may not eat 2 Baked Lays single serve bags of chips for breakfast or dinner. One thing has improved – I’m not waking up gasping, choking and feeling like I may have had a heart attack because I’m using my C-pap machine to deal with the sleep apnea again.
Despite the depression, I did a thing and I took a risk. I applied for a Full-time position within the organization I am currently employed with. It’s a Peer Support position, which I completed my training, with flying colors, just as the COVID shutdown started last year. I just emailed the department that manages such things to ensure my application has been received. It has been received and submitted to the hiring manager.
I’m also reaching out or responding to opportunities to connect with people I’m connected to through my faith community. I’m participating in a book study of Rich Villodas, The Deeply Formed Life. I participate in our weekly Zoom service. Right now we’re discussing how it might look when we start meeting again, since some of our faith family isn’t able to engage and participate often unless it’s remotely. I submitted some ideas, which were favorably received.
Partially because of the diabetes, I’ve decided to join a couple of my friends on a menu planning journey next month. I’m in no way prepared. The logistics of my life are chaotic and kind of overwhelming. So, I’m pretty sure I won’t be able to make it a complete success. However, I reminded myself “progress not perfection.” That made my inner perfectionist cringe in horror.
To that end, I decided to focus on breakfast. Simple, quick, easy diabetic friendly breakfasts I can prep primarily in the microwave. The first recipe I found was Breakfast Burrito in a Jar on Diabetic Foodie. Since I don’t have jars, I followed the link to the next breakfast, Mexican Microwave Scramble.
Between the Depression, Hypothyroidism, and fibromyalgia, as well as circumstances in my life, I’m really fatigued & low energy. I’m not sure how I’m still functioning at all. I just know that no matter how close I come, giving up isn’t an option.
How are you doing? For real, sometime sharing helps.
Parenting is hard. Parenting a child with special needs is hard. Parenting a girl in active adolescence is hard. Parenting from a place of trauma is hard. Parenting an adolescent girl with special needs when all aspects are points of trauma in your history, is beyond hard.
I feel like I’m constantly falling down, constantly lacking, and constantly failing . . . even though I know I’m doing my best. I know I’m a better parent now than I was seven years ago. I’m a better parent now than when my oldest daughter was the age my youngest daughter is now, 12. I’m a better parent than my mother was able to be when I was 12. But, I still don’t feel like I’m a good parent or the parent my child needs and deserves.
The reality is that I am really struggling. I love my child but I don’t like her. I love her so much and want so much good for her, but I find myself resenting her for things she has no control over. I’m so proud of her and amazed by the things she does and how strong and determined to be herself she is. At the same time, I am so incredibly ANGRY at how her strength and determination flatten and steamroll the people around her . . . like me and her nieces and nephew. I love her but I hate being her mother.
That’s awful. I know it is. But, it’s also my truth. It’s a convoluted truth rooted in the trauma, rejection, and abandonment issues between my mother and myself when I was 12 years old. Issues that I will never be able to work with her on because she died . . . committed suicide . . . when I was 12.
My little girl isn’t so little anymore. She turned 12 at the beginning of December. She’s taller than me . . . mostly because, like many children on the Autism Spectrum, she’s a “toe walker.” She travels on her tiptoes. Walking with her feet flat from heel to toe is like an impossibility for her. There was no physical reason for it and we put her through physical and occupational therapy to try to prevent any negative effects from the toe walking. To no avail. Now it’s reaching the point of discomfort and pain for her to not walk on her toes.
I wish I could let her be herself, with her idiosyncracies and quirks, without feeling so beyond frustrated and annoyed. She absolutely refuses to do anything or engage with anyone other than her preferred activities and people who she wants to be around. I feel powerless, especially in light of the societal expectations, rules, and norms regarding parenting and education, especially with children who have special needs. The thing is she doesn’t appear or seem to be autistic to most people. Even her medical evaluation team had difficulty coming to agreement regarding her autism. She’s lived in emotionally traumatic circumstances since conception. So, there are behaviors and reactions that stem from the autism and there are behaviors and reactions that are rooted in her trauma exposure history. Stir in pubescent hormones, in the middle of a pandemic that has everyone acting off and dealing with various types and degrees of trauma, and I have my very own Katie Kaboom.
If the truth be told, I’m probably as much of a Katie Kaboom as my daughter is . . . or at least I feel like I’m on the verge of exploding with her a lot of the time. There’s this surreal sense of loss of control and imminent danger creating a sense of fear of myself and what I’m capable of.
The last memory I have of an interaction between me and my mother lingers on the edges of my consiousness most of thetime when I’m around her.
I had recently turned 12. It was late June or early July, I think. We were living in an old adobe group of single story apartment buildings that had been built to use as military barracks in the 1940’s. Adobe buildings surrounded by asphalt. No trees. No grass. No shade. It was unrelenteningly sunny. The air was still and stuffy. My mom was working as a night janitor with her brother and his wife, who lived in the building catty-corner from ours. While cleaning may have been her job, it wasn’t something that was a priority in our apartment. We were a couple of clutterbugs. So my mom was embarrased for people to see the condition of our apartment. All the doors were shut tight and windows shuttered and covered so no one could see in.
I was hot. The heat was draining and I had no energy to do anything. I just wanted to breathe and I felt like I was suffocating in the stuffy heat of the closed apartment. I didn’t want to go out in the shadeless parking lot/driveway that surrounded the apartments. We had only lived here for three or four, maybe five months. I didn’t have any friends and didn’t have anywhere I could go. I was restless and listless at the same time. I decided to stand in the doorway, with my face pressed against the doorframe on the right, the door pressed against my left cheek, my stocky body filling the area between the door and it’s frame. Nothing visible from the outside.
She was embarrased, exhausted, and overwhelmed . . . I know and recognize this now, but at that time I only thought she was being controlling and unreasonable. It felt like what I needed and wanted didn’t matter to her, even a little bit. She was yelling at me, trying to get me to close the door. I was yelling back, telling her how no one could see inside. I don’t know how long it went on. Not long, I’m sure, but, it felt like it stretched on for a long time, each of us getting angrier and louder. I can’t remember specific words. But, it wouldn’t surprise me if I had called her names or cussed at her.
Suddenly my head was jerked back by my hair and the next thing I remember is that I’m laid out across the sofa and she was sitting on my legs, preventing me from moving. I was yelling at her and trying to kick her off of my legs. Finally, I was able to sit up, bend forward, and I bit her on her thigh as hard as I could until she got up.
I don’t really know what happened after she got up. I know my uncle burst through the door a short while later to check on me. He had seen me standing at the door, then disappear suddenly before the door closed. He was condemning and critical of her. She was crying. Sometime after that, she signed guardianship of me over to him and moved back down to Texas. A few weeks later we got the news that she had committed suicide.
When I’m dealing with my daughter and she’s refusing to do things like, take a shower, let me brush her hair, login to classes, do homework, or anything that isn’t playing Minecraft or drawing on her iPad I feel a rush of overwhelming feelings swirling around: anger, resentment, frustration, shame, sadness, hopelessness, helplessness. Then she starts laying on the insults and declarations of how horrible of a parent I am and how she loves her dad more than he loves me. If I attempt to remove her iPad, she lashes out at me physically – hitting, kicking, scratching, biting.
The roles appear to be switched with me as the mother. But, on a visceral level I don’t feel any more in control or that I matter than I did as a kid going through what I went through with my mom.
Maybe there’s a clue in that. Maybe it’s a hint that she wasn’t feeling in control or that she mattered. We don’t feel in control or that we matter so we do things that are about taking control and power from someone else, not because we want to feel powerful, but because we want to matter and if we don’t feel like we matter, we don’t feel safe. If I don’t matter to those who matter to me, then I don’t feel that my needs can get met. I’m supposed to meet her needs. It’s not her job to meet my needs. It’s not right or fair of me to resent her for this.
Is the resentment about her or is it about resenting that the person whose job it was to meed my needs and who I was supposed to matter too, oppressed and suppressed me instead of take care of me?
I know now that my mother experienced undiagnosed and untreated mental illness – likely Bipolar I with schizopherenic tendencies. She couldn’t help it and it wasn’t her fault. This knowledge and understanding gives framework and context, but, it doesn’t change the feelings and the child who needed protection and nurture still didn’t get protection and nurture. I struggle to protect and nurture myself and I struggle to provide that for my child.
I’ve been in and out of various forms of therapy since pre-adolescence. I’ve been doing it pretty consistently for the past seven years. Sometimes I wonder if I’m ever going to reach a point of being emotionally healthy.
The PTSD has had deep and lasting impacts on both my brain structure and neurochemistry. Bipolar II Disorder means that my brain structure and neurochemistry were already atypical. Both impact emotional health and affect my capacity for instinctively choosing emotionally healthy behavior.
Ten months ago my faith community stood beside me and supported me in my mental health recovery journey. They chose to pay for me to go through trauma recovery therapy, so I could better deal with the myriad of intense psychological and emotional stressors in my life. Past trauma is something I’ve been minimizing, avoiding, and denying most of my life. Dusting it off, picking it up, looking it in the eye, and examining it is not even close to easy. What is easy is distancing and distracting myself, even as I try to face it.
Last week I had a Telehealth appointment, which turned into an audio only appointment because of my dying phone. Since there’s no unoccupied space in my apartment and the sanctuary of a vehicle no longer exists, I walked to a coffee shop that has a large, covered, outdoor seating area. It also happens to be the socially distanced gathering place for the neighborhood dog owners and their dogs to hang out. I sat as far away as I could so as to be heard by my therapist and not heard by the community of strangers. Fun times.
I was telling her what happened the night I dropped my phone. I had gone over to my friends’ house, where I had been living from March – November, to pick up Christmas gifts for my grandkids. While I was there, the woman who had been my first friend from a DBT group I had been part of in 2018/2019, absented herself and had no interaction with me. Her wife indicated that I could try to communicate with her, but I would probably be unsuccessful. The wife is now my primary friend.
I have a lot of sad and mad feelings about this relationship break. However, when I was discussing what happened that night with my therapist, my brain fixated on the broken phone, as if that was the source of my difficult emotions. I was completely aware that’s what I was doing, but couldn’t seem to stop it. So, I said out loud that my brain was wanting to focus more on the phone than the lost friendship.
We discussed that for a bit. We drilled down some and identified some roots in prior relationships with important women in my life, starting with my mother, that ended in rejection and abandonment. Still a lot to unpack there, but both my therapist and I recognize that I’m stretched to capacity to address more trauma at this point. With that agreement in place, the question becomes, “what direction do we go and what do we work on?”
Since I’ve made some significantly bad decisions in the past several months which were decidedly co-dependent, avoidant, and risky and the outcomes of these decisions have increased the emotional, physical, and financial stress on me, thus maxing out my capacity for doing the more in depth trauma work, I figure I need to work on making emotionally healthy choices when faced with situations where my trauma responses have been triggered. I think that’s the only way to clear the path for me to do the deeper work.
My therapist suggested that my lack of emotionally healthy response is more likely rooted in the fact that I’ve never been around emotionally healthy people making emotionally healthy choices and that, while it may be possible for me to come to an understanding of what it means to be emotionally healthy, I may continually deal with an inability to operate with that same understanding. To which I responded that is why I said learning the behavior that comes from being emotionally healthy can be learned, even when the emotions aren’t healthy.
I think of it like reverse engineering good emotional health. Learning to act “as if” I am an emotionally healthy person, might enable me to become an emotionally healthy person.
I think I just found my focus for this year.
2021, the year I become an emotionally healthy responder.
‘Therefore, my dear brothers, be steadfast, immovable, always excelling in the Lord’s work, knowing that your labor in the Lord is not in vain.’ 1 Corinthians 15:58
I don’t know about you, but, I suspect that, like me and many others I know, you might be tired. I mean mentally, emotionally, and physically fatigued. With everything going on in the world around us, that alone is enough to bring on the fatigue.
Just when things were on the verge of or starting to open up from the restrictions of the pandemic, there’s a spike cases and hospitalizations. Now things are tightening down again, as Oregon enters it’s 14th week of sheltering in and wearing masks. As a result of these pandemic related things, the national and local economies have been increasingly depressed with businesses closing (small business the most) and people losing their jobs, and the national unemployment at the highest it’s been since 1940. The protests for Black Lives Matter are entering their fourth week, having just passed Juneteenth, the celebration of the Emancipation of the slaves. Not to mention the victories and losses for our LGBTQ friends, family, and neighbors. Plus, the Presidential election cycle and the polarized politicization of both the pandemic and the BLM movement.
It’s overwhelming and absolutely exhausting. Then you add in whatever is happening for you and your loved ones, as well as how these national events are affecting you on an individual level.
So, there’s a lot of confusion. There’s a ton of conflicting information and even more conflicting opinions. The focus of the news and the media is sensationalized and focused on the painful and negative. There’s very little constructive dialogue and there seems to be a constant, false dichotomy of “us vs. them” everywhere you turn.What do we do with all of this? How do we get some relief, some clarity? How do we get some rest, other than avoiding the media and becoming turtles withdrawing into our shells? How do we decide where to place our focus?
The passage that the verse above comes from is Paul speaking about Jesus and all that he did for us to have life and to look forward to. He’s offering us a foundational reason to keep moving forward and to keep doing good in this world, even when what is good seems to have gone on vacation. Even though the issues and things around us may seem too big and too much for each of us as individuals to make a difference in, anything we do to bring the light of Jesus and God’s love into the lives of the people around us is not in vain.
‘Therefore, as we have opportunity, we must work for the good of all, especially for those who belong to the household of faith. ‘ Galatians 6:10
But, before we can do any of that, before we have anything to give, we have to allow ourselves a chance to rest, recharge, and fill up on that light and love ourselves.
‘“Come to Me, all of you who are weary and burdened, and I will give you rest. All of you, take up My yoke and learn from Me, because I am gentle and humble in heart, and you will find rest for yourselves. For My yoke is easy and My burden is light.”’ Matthew 11:28-30
Now is the time for rest, recharge, and renewal, so that we can reenter the world’s arena and face the things around us with hope and love to share.
‘Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable — if there is any moral excellence and if there is any praise — dwell on these things. Do what you have learned and received and heard and seen in me, and the God of peace will be with you.’ Philippians 4:8-9
It is imperative that we look for the good in the midst of the bad. It’s there. Look for the stories of those who are giving of themselves, the stories of the peacemakers, the stories of those who are offering comfort, and even those who are offering happy and joyful things in the midst of the sorrow and the tragedy. Many may argue that now is not the time for levity and laughter. I would argue that now, more than ever, is the time for us to take a break and seek these things out.
‘A joyful heart is good medicine, but a broken spirit dries up the bones. ‘ Proverbs 17:22
If we don’t take a break from the darkness around us and seek the light, our soul dies bit by bit and our spirits become broken. That’s no way for anyone to live. That’s not the legacy that Jesus left us. He left us God’s Spirit to live in us, so that our spirits can live and thrive, and that so we can share that life with those around us.Take a break. Get some rest. Find a reason to smile and laugh. Then, take that out with you and reenter the fray so you can help others to have a break, take a rest, and have cause to laugh and smile.
Rejoice with those who rejoice; weep with those who weep. ~ Romans 12:15 HCSB
How can we show up in the midst of pain and grief for our marginalized siblings in the world around us, when we have no idea what to do or say to them and what we CAN do feels futile in the face of the vitriol and intentional ignorance? How do we not wind up making our sense of ineffectiveness and futility more important than their experiences of violence and suffering?
The answer is to BE with them in their grief. Acknowledge and validate their anger. Learn why they fear the things we don’t. Share and celebrate the things and people they celebrate. Be willing to set aside your “stuff” to show them they and their “stuff” matters. In other words, treat them the way you want to be treated.
It may be challenging to look away from our own issues, circumstances, and experiences in order to look and see those of others, much less step into their world and be with them. But, it’s very much worth the effort to do so. We also have guidance on how to do this.
‘He comforts us in all our affliction, so that we may be able to comfort those who are in any kind of affliction, through the comfort we ourselves receive from God. Praise the God and Father of our Lord Jesus Christ, the Father of mercies and the God of all comfort. ‘ 2 Corinthians 1:3-4 HCSB
How do we receive comfort from God? Sometimes it’s an internal sense of peace or a lifting of the spirit, maybe a lessening of the pressure on our chest or the lessening of the restriction of our throat. Maybe it’s through a song, a poem, a meaningful writing, or piece of scripture. Perhaps a video or show. However, there are times when it is another person and their words, actions, or just them being present with us which contributes to the feeling of being comforted. Those are the things we can do and share, if they are something the person grieving is in a place to receive.
‘The Spirit of the Lord God is on Me, because the Lord has anointed Me to bring good news to the poor. He has sent Me to heal the brokenhearted, to proclaim liberty to the captives and freedom to the prisoners; to proclaim the year of the Lord ’s favor, and the day of our God’s vengeance; to comfort all who mourn, to provide for those who mourn in Zion; to give them a crown of beauty instead of ashes, festive oil instead of mourning, and splendid clothes instead of despair. And they will be called righteous trees, planted by the Lord to glorify Him. ‘ Isaiah 61:1-3 HCSB
Jesus came to do these things, show us how to do these things, and teach us to do these things so we can share and demonstrate the love he shared and demonstrated to us. This is how we can learn and know how to show up in the midst of the pain and grief, anger and fear, our marginalized and brutalized brothers and sisters experience.